What is it?
Fowler’s Syndrome is a long term condition causes full or partial urinary retention (urine stays in the body or one can only do a little, leaving a lot of urine behind in the bladder) and solely affects women mainly in young female adults (age of 20-30s).
- To pass urine, one needs to send signals from the brain to the urethral sphincter (this is the circular muscle that surrounds the opening to your bladder, the muscle that keeps you continent- hold urine in) and for this muscle to relax.
- The problem is caused by the sphincter’s failure to relax and thus allow urine to be passed normally.
- This is not classed a urological, gynaecological or a neurological condition (where there is a problem with the signal between the brain and sphincter’s muscle), instead its an unknown cause on why sphincter’s muscle does not relax and and coordinating urination, (research is still ongoing out on whether the return signal from the bladder to the brain is not activating fully).
- This is not a form of incontinence, but can be mistaken for that.
- This is a difficult condition to diagnose.
This condition can cause
kidney infections, as urine is not allowed to leave the body. it can be mistaken for
cystitis-type conditions and further investigations should be carried out instead of giving on going courses of antibiotics.
Antibiotic resistance can also become an issue
Diagnosis test
- Elevated urethral pressure profile – this test measures the pressure in the water-pipe
(urethra) sphincter muscle, as a catheter is inserted and withdrawn several times
- Abnormal findings in urethral sphincter electromyography including decelerating bursts
- Evidence for bladder outflow obstruction on video urodynamics testing (This involves measuring the pressure inside the bladder as it fills and
looking at how it works when you are trying to pass urine. When this is combined
with x-rays it is called video urodynamics)
- Increased sphincteric volume on imaging
- Bladder Ultrasound – can see how much urine is left in your bladder after you try to
pee
- Cystoscopy – is a camera test done to look inside the bladder for any problems
- Sphincter EMG (Electromyogram). This records electrical activity in the urethral
sphincter.
- Ultrasound of the sphincter – this can help measure the size of the sphincter which
may help work out what has gone wrong
Because it is so hard to pass urine, most people with Chronic Urinary Retention need to have
a catheter (a tube to help drain the urine) to help them to drain/pass often over a litre of urine with consequent relief of the pain.
Cause
- Unknown cause
- Frequently associated with:
Treatments
- Surgery Operation i.e.
- Cystoscopy
- Gynaecological (e.g. hysterectomy) operation
- Obstetric i.e.Caesarean section)
- Any operation where a urinary catheter is used can be a trigger
Medication
Symptoms
- Painless urination?
- No sense of urinary urgency despite high bladder volumes (risk of loss of bladder control, in addition to retention)?
- Some women experience complete retention, others experience partial urination with a residual amount of urine left in the bladder?
- Hard to push urine (Some patients may have to strain to urinate or take a long time to void)?
- Straining does not help emptying?
- Sense of ‘something gripping’ or difficulty on removing the catheter which has been used for urinary drainage?
- Back pain?
- Bladder spasms?
- Suprapubic pain (pain over the bladder)?
- Dysuria (discomfort/burning whilst passing urine) due the urinary infections?
- Sexual intercourse can be painful and problematic?
Complications /Information to beware of/General tips:
Medical Emergency Condition
Do not wait, phone for an ambulance if have and/or develop:
- Passing no urine longer than 12 hours
This condition can co-exist with:
- Ehlers Danlos urinary complications:
- Vulvodynia
- Vestibulodynia – pain that occurs at the entrance (vestibule) to your vagina
- Dyspareunia- pain during or after sex
This condition can lead to:
Abnormal nerve function (not nerve damage) which include:
- Persistent tiredness
- Irritation, anxiety and depression
- Post traumatic stress
- Long term neck and back pain
- Fibromyalgia
- Weakness in arms and legs
- Chest pain
- Tremors
- Irritable bowel syndrome
- Pelvic pain
- Seizures
This condition may show similar symptoms to:
Please talk to your healthcare professional (i.e. Medical Doctor/Pharmacist) for further advice
Detailed Information
Please copy and paste any key words from the title: Fowlers Syndrome in the following respective 'Medtick References and/or Sources' to find out more about the disease (this also may include diagnosis tests and generic medical treatments).
- NHS
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- Medscape
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References
- Chronic-Urinary-Retention-Fowlers-Syndrome-information-sheet-v8 (accessed 9/7/23)
- http://www.fowlersyndrome.co.uk
- https://fowlerssyndrome.co.uk